通讯作者: 吴晶, jingwu@tju.edu.cn

DOI：10.12201/bmr.202407.00012

Development of the conceptual framework for health-related quality of life in Chinese populations: A qualitative study based on the general population and patients

• 摘要：目的：探索中国人群对于健康相关生命质量（Health-related quality of life，HRQoL）定义的理解，构建中国人群HRQoL概念框架，用于指导中国人群HRQoL测量工具研发。 方法：研究从全国31个省市招募中国一般人群与疾病患者样本，通过开展一对一半结构化质性访谈收集其对HRQoL的看法与理解。基于扎根理论对质性信息进行多层次编码，利用框架法对编码进行梳理、归纳，构建中国HRQoL概念框架。 结果：研究共纳入68名受访者（40名一般人群与28名疾病患者）。研究从质性信息中提取1,558个一级编码，分析整理为180个二级编码、31个三级编码（维度），最终归纳出6个主题的中国人群HRQoL概念框架。 结论：基于中国人群健康观念构建的HRQoL概念框架包含症状、身体功能、情绪、认知、活动、社会功能6个主题，其中尤以胃口/食欲、睡眠和疲乏维度显示出HRQoL概念的中国文化特异性。

  关键词： 健康相关生命质量；概念框架；中国人群；质性研究

   

  Abstract: Objective: To explore the understanding on health-related quality of life (HRQoL) among the Chinese populations and to develop a HRQoL conceptual framework that can be used to guide the development of Chinese HRQoL instruments. Methods: Respondents of Chinese general population and patients populations were recruited from 31 provinces in China. One-to-one semi-structured qualitative interviews were conducted to collect the views and perceptions on HRQoL. Based on the grounded theory, multi-level coding of qualitative interviews was carried out, and the framework method was used to sort out and summarize the coding to develop the HRQoL conceptual framework in China. Results: A total of 68 respondents, including 40 general population and 28 disease patients, were included in the study. The study extracted 1,558 open coding from the qualitative interview, which were analyzed and sorted into 180 axial coding and 31 selective coding (dimensions). The HRQoL conceptual framework for the Chinese population with 6 themes was finally summarized. Conclusion: The HRQoL conceptual framework based on the health concepts and preferences of the Chinese population contains 6 themes, refers to symptoms, physical function, emotion, cognition, activities and social function. In particular, the items of appetite, sleep and fatigue identifies may reflect Chinese cultural specific perceptions on important aspects of HRQoL.

  Key words: Health-related quality of life, Conceptual framework, Chinese population, Qualitative study

  提交时间：2024-07-10

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• 序号	提交日期	编号	操作
  1	2024-04-03	bmr.202407.00012V1	下载

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